Cookies on this website
We use cookies to ensure that we give you the best experience on our website. If you click 'Continue' we'll assume that you are happy to receive all cookies and you won't see this message again. Click 'Find out more' for information on how to change your cookie settings.

Professor Carl Heneghan, SPCR Board member, director of the Centre for Evidence-Based Medicine and founder of the All Trials campaign, submitted evidence to support a new report on clinical trials published by the House of Commons Science and Technology Committee this week. The report describes the current lack of transparency of many clinical trials as “unacceptable”.

Prof Heneghan told Guardian Science yesterday, "We need to learn about the effective medicines and the ineffective medicines more efficiently. We need to know about all of them...There's an important principle in science, that it's built on replication. If I do an analysis, I must show the data that analysis is based on. In the modern world, we're not going to stand for this lack of transparency."

The report highlights a number of important issues, including changes to consent to facilitate data sharing, recommending that trial registration and publication of summary-level results be made contractual requirements for all publicly-funded trials. The Committee also asked the Government to take steps to facilitate greater sharing of the raw data generated during a trial. Read the full report.

Committee Chair Andrew Miller MP said: “Many of the trials taking place today are unregistered and unpublished, meaning that the information that they generate remains invisible to both the scientific community and the public. This is unacceptable, undermining public trust, slowing the pace of medical advancement and potentially putting patients at risk."

Similar stories

Packing an emotional punch: Using theatre to raise awareness of doctors’ mental health

Dr Ruth Riley's SPCR funded qualitative study to explore the barriers and facilitators to help-seeking by General Practitioners with mental health problems was added to the NIHR website as a case study earlier this month.

Let’s Talk About Weight

SPCR doctoral student Charlotte Albury is a contributing author on the Public Health England's step-by-step guide to conversations about weight management with children and families for health and care professionals.