Aims & Strategy
The SPCR aims to
- Improve patient and public involvement and engagement (PPI&E) reporting, and review the process of monitoring PPI&E in the SPCR
- Promote both involvement and engagement through shared learning and dissemination of key resources
- Monitor Diversity in PPI panels across SPCR
- Review PPI&E capacity within the organisation of the SPCR
- Collaborate with other NIHR infrastructures to co-ordinate activities
Involvement in design, conduct and management
At the Centre for Primary Care at the University of Manchester, a PPI group (PRIMER) comprised of patients, carers, mental health service users and interested members of the public has been convened. PRIMER provides feedback on research projects that are at an early stage in their development, normally prior to funding. The group comments on a range of research materials including information leaflets, questionnaires and topic guides, and plain language summaries.
No matter how complicated the research, or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible and often more cost efficient as well.
- Professor Dame Sally C. Davies, FRS, Chief Medical Officer and Chief Scientific Adviser, Department of Health.
More recently, two PRIMER member led research ideas have been developed into fully funded research projects. It is important to note that PRIMER works as a complement to, not as a replacement for, project specific PPI work.
The Keele University, Department for Primary Care Health Sciences has an established Research Users' Group (RUG) who advise on research design, the use of research materials such as questionnaires and letters to patients, and comment on research proposals.