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Exploring approaches to reach and engage people with chronic high impact pain (CHIP)

  • Lead: Dr Sarah Harrisson, Keele University

Chronic high impact pain (CHIP) is pain (lasting 3 months or longer) that is associated with significant distress or disability. The stories of people living with CHIP are complex and diverse. Those living with CHIP often find participating fully in family life, work, and the wider community difficult.

A future programme of research, aiming to improve lives for people with CHIP, is planned to co-design and evaluate a new patient-centred primary care-based intervention for people with CHIP.

This proposed project is the foundation of further work which will allow us to have meaningful PPIE with people with CHIP. However, engaging and involving this population in PPIE activities may be difficult.

The aims of this project are to:

  •  Co-produce a PPIE strategy with people with lived experience of CHIP and
  • Plan the co-development of the new intervention.

Focusing on co-production will offer potential to be more creative and innovative in developing the PPIE strategy. Optimised for people with CHIP, the PPIE strategy will help to improve engagement, relevance and acceptability of the new intervention. Within the challenging context of CHIP no single approach to PPIE will suit all. To be responsive and flexible to the needs of people with CHIP, informed by our current PPIE work, we will use person-centred approaches to identify, engage and involve up to 12 contributors. This will include people living with CHIP and the people they connect with day-to-day, e.g. partners, family and friends.

Our current PPIE work will set the agenda for the format of the PPIE activities in this proposed project. We anticipate that we will adopt an inclusive and accessible range of activities using innovative approaches, that may include technology (e.g. PhotoVoice, audio/video messaging). PPIE activities will decide and plan an approach for ongoing and meaningful PPIE, co-producing a ‘toolbox’ of resources for use in the future research programme. Potential elements of the future intervention will also begin to be explored.

To evaluate impact, a process of sharing, collating and integrating personal reflections will be embedded within the project. Our reflections will foster shared learning, help build trust and ensure that contributors’ participation is meaningful and rewarding.

Expected outputs

  • An innovative framework (a refined “toolbox”) for ongoing and meaningful public contribution optimised for people with CHIP
  • Development of a fellowship application (focused on the new programme of research)
  • Dissemination in lay/academic publications and presentations, including social media

 

 

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