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SPlaTOON

  • Lead: Alice Faux-Nightingale, Keele University

The SPLaT-19 project is currently exploring life with long-Covid in children and young people (CYP) between 8 and 17 years. SPLaTooN aims to share these research findings with CYP in an accessible and engaging way. To do this we will work with CYP in PPIE groups and CYP with lived experience of long-Covid, to coproduce resources providing information and advice to CYP about living with long-Covid.

 Over a four-month period we will meet with CYP PPIE members to explore:

  • perceptions of health information, particularly those relating to long-Covid, 
  • specific topics of interest about long-Covid, including reactions on the SPLaT-19 findings, and perceptions of access or engagement with health information,
  • views of the best formats, methods and platforms to share long-covid health information,
  • And how information can be shared in an accessible way.

We will then develop storyboards and mock designs for resources and use these draft materials to underpin a discussion around diversity, inclusivity, and accessibility of resources with the PPIE group. This will ensure we develop outputs that are accessible and relevant to the diverse population of CYP living with long-covid in the UK. 

Our PPIE group will include a range of ages, and we will aim to build in diversity including CYP living with disability and neurodiversity. However, it may not include many CYP who are experiencing long-covid, so we will also work with CYP who took part in the SPLaT-19 interviews and diary exercises to explore their thoughts about our storyboards and/or designs for media to ensure that the proposed content accurately and fairly reflects their experiences. We will arrange for the final content from these sessions to be produced, including CYP and students in this process as much as possible. 

The format and content of the resource will be shaped by the PPIE group and so, at this time, is not fully known. However from previous work we envision the final resources to include a series of short videos, produced in the style of current social media content, which will explore a range of topics about the experiences of CYP with long-Covid and provide advice for people with the condition. These can then be shared on social media platforms familiar to CYP e.g. TikTok. Other graphic media materials such as posters, comics, or leaflets may be produced to be distributed in key locations such as GP surgeries to maximise impact PPIE members and CYP participants. 

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