Currently, researchers in primary care do not have an effective tool for measuring patient reported outcomes. Existing questionnaires are either too narrow or too broad in focus and are not designed to capture the full impact of innovations in primary care. Our testing of the PCOQ shows that it has great promise for use in primary care research, which we believe is timely, given the high demand for new interventions in this area
- Dr Mairead Murphy, SPCR trainee and Senior Research Associate at the Centre for Academic Primary Care and lead author
Clinicians and researchers often test new configurations of services to improve primary care, for example electronic consultations, health coaching or behavioural therapies. The outcome of these interventions is usually assessed by asking patients to complete a questionnaire before and after the intervention. However, there is currently no Patient Reported Outcome Measure (or PROM) that captures the range of outcomes commonly achieved in primary care from a patient perspective. The PCOQ has been designed to plug that gap, with the overall aim of improving patient care.
The questionnaire, developed with funding from the National Institute for Health Research, is intended for use in research studies to test the effectiveness of interventions in primary care that aim to improve service quality, costs and outcomes.
Although there are questionnaires that are disease-specific and tailored to symptoms or particular conditions, these are of limited value in studies where patients have multiple conditions. The PCOQ has been specifically designed to capture outcomes for patients with more than one health problem, many of whom have long-term conditions. It contains 24 questions in four areas: health and well-being; health knowledge and understanding; confidence in health plan; and confidence in health provision.
The tool was tested by 600 patients in GP practices in the South West of England and the results have been published in the British Journal of General Practice today.
The PCOQ was found to be acceptable, feasible, valid, reliable and responsive (showed change in the patients it was expected to show change in), and measured the outcomes that primary care patients seek and that clinicians can influence.
Professor Chris Salisbury, co-author of the study said: “The PCOQ was developed to test the benefits of service-level interventions in primary care and, as such, fills an important gap. However, it also has the potential to be used at an individual level, to identify patients’ main concerns in clinical care. One of the next steps for this research is to test if it is useful for patients to complete the PCOQ before a consultation and use it to identify patient problems.”
For more information about the PCOQ and to register to useit see the Primary Care Outcomes Questionnaire.
Paper: ‘Primary Care Outcomes Questionnaire: psychometric testing of a new instrument’ by Mairead Murphy, Sandra Hollinghurst, Sean Cowlishaw and Chris Salisbury. Published in British Journal of General Practice. 27 March 2018.