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Sharing qualitative health and social care research data

Facilitators: Fiona Stevenson, Barbara Caddick, Geraldine Leydon, Lynn Laidlaw, Karen Lloyd, Ali Percy 

When: 18th April, 1-4pm 

How:  In person only, 102 Statistics Lecture Room,  1-19 Torrington Place, University College London, London, UK ; Refreshments will be provided, but unfortunately we will not be able to provide lunch before the session.


Register: SPCR Masterclass: 'Sharing qualitative health and social care research data’ (

Target audience: PhD students and early/mid-career researchers with an interest in qualitative research; Limit:  20

Description: Are you interested in qualitative research? Would you like to learn more about the debates around the sharing and re-use of qualitative research data? Increasingly, there are expectations from both funders and publishers of health and social care research that this data is made available for secondary analysis outside of the research team who collected it. Yet there are special considerations for the sharing of qualitative data.

In this introductory interactive workshop, based on an ongoing SPCR project (Q-DaPS), you will explore the debates and issues around qualitative data sharing and re-use. During this session, you will engage in interactive facilitated discussions using real research data to explore the challenges and opportunities presented by qualitative data sharing. You will also explore some of the practical considerations for data sharing and the resources available to support you to build data sharing into your qualitative research projects.

About the Facilitators:                                                                                                                                          

Fiona Stevenson is Professor of Medical Sociology at UCL. She has expertise in a range of qualitative approaches, including conversation analysis, and has published extensively using sociological theory to inform applied research. She teaches medical sociology, social theory, and qualitative methods to undergraduates and co-developed and co-facilitates the Qualitative Research Methods in Health short course which has been running since 2012.

Barbara Caddick is a Senior Research Associate in the Centre for Academic Primary Care at the University of Bristol where she has contributed to research relating to medicines and prescribing. She has been involved in managing the One in a Million research dataset since 2017. She has a PhD in social and cultural history and is developing a programme of work exploring the history of primary health care.

Geraldine Leydon is a Professor in the Primary Care Research Centre (PCRC) at Southampton University. She has a background in Medical Sociology, specialising in qualitative research methods.  Her work encompasses many topics, including understanding and improving the patient experience and optimising communication across a range of health care settings/topics. Geraldine co-leads the Qualitative Methods in Public Health (QMPH) module, which is part of the Masters in Public Health run by Southampton University.

Lynn Laidlaw lives with a rare disease and multiple long term conditions. She is involved as a Patient and Public Contributor to research and has worked as patient researcher on projects including qualitative research. She is particularly interested in co production of research.

Karen Lloyd is a medical sociologist in the Research Department for Primary Care and Population Research at UCL and the Senior Research Associate for the SPCR-funded Q-DaPS (‘Qualitative Data Sharing and Preservation’). She has a background in qualitative research in sexual health/HIV and in digital health.

Ali Percy works in commercial market research as a qualitative researcher, delivering insight primarily for public sector organisations, including charities, government departments, and the NHS.  She was prompted to become one of the PPI representatives for Q-Daps after working on a number of projects exploring public perceptions of clinical research, use of health data and informed consent.