Creative and novel approaches to engaging with children with eczema and their carers
- Principal Investigator: Shoba Dawson
- 1 July 2019 to 31 March 2020
- Project No: 446
- Funding round: FR17
Aims:
1) To use creative, co-produced approaches to raise awareness and engage with children with eczema and their carers.
2) To reach diverse audiences through undertaking public engagement activities and promote inclusive PPI and participation in future research.
3) To produce outputs that can be disseminated to both public and academic audiences via social media, presentations to colleagues and via the CAPC and SPCR websites, and set up a local PPI group for children with eczema.
We will undertake public engagement events in collaboration with different stakeholders to raise awareness and use creative approaches to engage with children with eczema and their carers. We will involve medical students, artists, our local PPI group and national organisations (e.g. Eczema Outreach Support) to raise awareness through storytelling and to highlight the main points arising from discussions during the events. This will also contribute to accessible outputs to maximise dissemination
Links to projects
The BEE (Best Emollients for Eczema, www.bristol.ac.uk/bee-study) study is funded by the NIHR HTA, and the TEST (Trial of Eczema allergy Screening Tests, www.bristol.ac.uk/eczema-allergy-study) study is funded by SPCR (project 383).
The BEE study is a randomised controlled trial comparing the effectiveness and acceptability of the four types of emollient most commonly used to treat eczema. It is recruiting children aged 6 months to 12 years old with mild or worse eczema, via GP surgeries. Participants are randomised to use a lotion, cream, gel or ointment as their only leave-on emollient. Patient Orientated Eczema Measure (POEM) is measured weekly over the 16-week primary outcome period, with participants followed up for 52-weeks in total. A nested qualitative study, comprising interviews with parents and older children, will complement and aid understanding of the quantitative findings regarding the perceived benefits or problems with the study emollients.
TEST is a feasibility study exploring the clinical and cost-effectiveness of routine food allergy testing, and advice compared to current standard practice. It is recruiting children aged 3 months to 5 years with mild-severe eczema via GP surgeries. Participants will be followed up to 6 months post baseline. A nested qualitative study, comprising of interviews will help in providing a better understanding of issues of food allergy, allergy tests and dietary modification in children with eczema.
PI: Shoba Dawson, University of Bristol